Saturday, May 13, 2017

PSYCHOSIS & PARKINSON’S – WHAT TO DO?


 Overall hallucinations and psychosis may occur in about 20% of Parkinson’s disease patients. Drug-induced psychosis in Parkinson’s disease is more common in the elderly and at times may be triggered by medications used for treatment of Parkinson’s disease.
Some drugs that may be involved in causing psychosis include: amantadine, selegiline, and dopamine agonists.

 Confusion and hallucinations can be very debilitating. It is crucial that these problems are discussed with a physician. The physician may modify the current drug therapy for Parkinson’s disease to minimize these symptoms. Hallucinations become more frequent when one is in an unfamiliar setting. Visual hallucinations and psychosis are among the major causes of long-term placement of patients with Parkinson’s disease. 

The visual hallucinations in Parkinson’s disease may be detailed and well-formed but non-frightening in most cases. Auditory hallucinations are rare but if they occur, they are accompanied with visual hallucinations. Patients with severe dementia might develop periods of confusion especially at sunset time. The following tips may help in coping with the visual hallucinations: 

1.      Adequate nutrition and fluid intake.
2.      Ruling out the precipitating factors such as infections, dehydration, and vision or hearing impairment.
3.      Improving night-time sleep.
4.      Turning on the lights at night in order to reduce shadows.
5.      Switching off the television when violent scenes are on.
6.      Caregiver may try to explain to the patient, but should neither argue with the patient that hallucinations are not real, nor reinforce them.
7.      Repeated orientation of patient and reassurance is absolutely essential.

A caregiver has to realize that a hallucination may seem very real to the patient. If the patient is beyond reason, but calm and non-threatening, nothing may be needed. However, if the patient is agitated and becomes violent, it is best to call for assistance to help avert serious injury. If needed, one should call emergency services.

Z. Sarfraz MBBS (Can) and R.K. Rana, OS (Can) IFS, World Parkinson’s Program, Toronto, Canada


Markham Mayor Appreciated Efforts of World Parkinson's Program

Mr. Frank Scarpitti, the mayor of city of Markham,Ontario, Canada and the city council appreciated highly the efforts of the World Parkinson's Program in their special message at the occasion of Gala Dinner of World Parkinson's' Program in Toronto on April 29, 2016.


World Parkinson's Program is a Canadian based non-profit, global organization with the mission of improving lives of all those affected with Parkinson's disease directly or indirectly.Our objectives include promoting EDUCATION, providing SUPPORTIVE SERVICES and ADVOCACY for Parkinson's patients and caregivers around the world. We aim to reaching every individual across the world who has been affected with Parkinson's disease to educate them in their own language, provide supportive services as well as to advocate for them at the local and global level.“Those who fight Parkinson's with knowledge always find solutions" is the central theme of this Program. This program was founded by a Canadian neurologist A.Q.Rana in 2008 and has chapters in many countries around the world.

Parkinson’s Activist, Dr. Rana, not satisfied with the care of Parkinson’s patients globally!



Toronto, Canada: Parkinson’s is one of the most complex neurological disease which affects about 10-20 million individuals around the world.  The number of Parkinson’s patients is increasing globally and may double by 2031. Today the whole world has become a global village. Thinking of humanity as one family, there are great disparities in access to resources including medical care in various parts of the world. On one end, Parkinson’s patients in some parts of the world are fortunate enough to have best medical care possible available to them free of cost, but on the other side of coin, millions of those struggling with Parkinson’s are not able to access the basic medication for Parkinson’s disease, “Levodopa,” which is needed by almost every Parkinson’s patient during the course of this debilitating disease. Dr.Rana, Parkinson’s activist, founder of World Parkinson’s Program, and a Canadian neurologist, is not fully satisfied on the direction of effort most health organizations are going on with reference to Parkinson’s disease.

 This is a grim situation, and the question is whether or not we can turn it around. Like every other great task, it cannot be accomplished easily, soon, and alone. You need a great passion, and dedication to carry on this tough task. The greatest challenge today in the delivery of medical care to Parkinson’s patients is to provide easy, affordable, and in many cases, free access to Parkinson’s disease medications to every single Parkinson’s patient living in any part of the world.  Dr. Rana thinks that “At the global level, a lack of education and poverty are two main epidemics affecting the care of Parkinson’s patients.” Majority of those individuals struggling with Parkinson’s are affected with poverty and they are living on less than $2.50 a day. We need to address the most important daily need of every Parkinson’s patient, MEDICATIONS, MEDICATIONS, AND MEDICATIONS! In addition, we need to provide educational resources to Parkinson’s patients from all communities in every language. Most Parkinson's patients living in underdeveloped countries are not literate, or have access to internet or technology and are elderly. Thus we need to provide them paper  based multilingual educational brochures in their own languages, who they can read, learn information about Parkinson's and refer to them again if needed.


World Parkinson’s Program was founded by Dr. Rana in 2008 and it focuses on improving the medical care of Parkinson’s patients. Therefore, World Parkinson’s Program has a mission of providing medications, walking aids, multilingual educational literature including brochures in many languages, and healthcare supplies to those Parkinson’s patients who are not able to afford purchasing them. Currently the educational brochures written by Dr. Rana are available in more than 20 languages, and are used in more than 50 countries around the world serving the diverse communities. World Parkinson’s Program is starting more chapters around the world. 

Z.Sarfraz, MBBS (Candidate). World Parkinson's Program.

Friday, May 12, 2017

JOHN BAUMANN - BLOGGER WORLD PARKINSON'S PROGRAM


John Baumann is a former US corporate attorney, diagnosed with Parkinson’s in his late 30’s, John turned to teaching, writing, and speaking as his new career path. His basic message: “whatever hand life deals you, whatever life changing adversity you have to endure, you still have some control over it.” “You don’t have to just to live well,”he advises,” but live an Amazing Life.” The formula he proposes: Faith in yourself, discipline, determination, desire, intensity, and inner strength.John Baumann is the chair of Patient Education Committee of World Parkinson's Program

MARY SPREMULLI - BLOGGER WORLD PARKINSON'S PROGRAM


Mary Spremulli, MA,CCC-SLP is owner of: Voice Aerobics, LLC, a speech-language pathology private practice located in SW Florida. She is also the creator of The Voice Aerobics family of products, designed to be used independently by patients with a goal of maximizing function and reducing the impact of speech, voice, and motor symptoms associated with Parkinson’s. Voice Aerobics®, A Whole Body Voice Strengthening Program and Hi-VOLT® 4PD are programs which blend the art and science of voice therapy into fun home-based practice.
Ms. Spremulli has worked in the health care field for over 30 years and lectured nationally and internationally on health related topics. Her blog has been selected as one of the top 49 blogs about Parkinson’s disease. She serves on the Education Committee of the World Parkinson’s Program, and the Medical Advisory Board of the Neurochallenge Foundation, Sarasota, Fl..

Tuesday, May 2, 2017

Justin Trudeau Responds to Call of Founder of World Parkinson’s Program

Justin Trudeau Responds to Call of Founder of World Parkinson’s Program


TORONTO, ONTARIO, CANADA. May 2, 2017. On April 11, World Parkinson’s Day, the founder of World Parkinson’s Program, Dr. A.Q. Rana, called upon more than one hundred world leaders to help raise awareness for Parkinson’s disease in their respective countries and regions. Dr.Rana wrote personal letters these leaders, and many celebrities, requesting them to support the cause of Parkinson’s disease. Justin Trudeau, the prime minister of Canada, responded to the request of Dr.Rana, and assigned the minister of health, Jane Philpott, to address this matter. The Minister of Health is responsible for maintaining and improving the health of Canadians. The founder of World Parkinson’s Program is hoping to hear from the health minister, and is expecting a positive response in the near future.
This campaign of World Parkinson’s Program aims to enhance education amongst the general public about the debilitating effects of Parkinson’s disease.  Dr. Rana, in his letters to world leaders, had also alarmed world authorities about the rising number of Parkinson’s patients globally, and encouraged them to increase resources as well. There are about 100, 000 Canadians affected with Parkinson’s disease and more than 10 million people affected globally, in addition to the many undiagnosed cases of Parkinson’s. This number may double by 2031. Many of these individuals are living in poverty in various parts of world, and are not able to afford medications and walking aids. They also don’t have access to educational literature about Parkinson’s in the languages they understand. In many cultures, symptoms of Parkinson’s disease are wrongly attributed to ageing, and therefore many patients remain undiagnosed and thus untreated.
Dr.Rana believes that a campaign involving world leaders will have a global impact on the cause of Parkinson’s disease. World Parkinson’s Program is a Canadian based charitable organization dedicated to improving the daily lives of Parkinson’s patients and their access to better treatment for Parkinson’s at a global level.
World Parkinson’s Program is the only organization which provides medications, walking aids, and educational literature about Parkinson’s disease in more than 20 languages, which are used in almost 50 countries. World Parkinson’s Program was founded in 2008, and has chapters in many countries across the globe.

World Parkinson’s Program,Toronto, Canada. www.pdprogram.org

Tuesday, April 11, 2017

Recipients of the Dr.Rana International Parkinson’s Community Service Award for the Year 2016

World Parkinson's Program Announces Names of the Recipients of the Dr.Rana International Parkinson’s Community Service Award for the Year 2016

Announced on World Parkinson’s Day, April 11, 2017, 

CONGRATULATIONS TO OUR FRONT-RUNNERS! 

1.      Anthony Chambers, Medical Assistant, Neurology, San Antonio, Texas, USA

2.      Dr. Robert Wilcox , Associate Professor and Consultant Neurologist, Flinders Medical Centre, Bedford Park, Adelaide, Australia 

  
World Parkinson’s Program announces the names of two recipients for the Dr. Rana International Parkinson’s Community Service Award for the year 2016. World Parkinson's Program highly appreciates the passion of these inspiring individuals to improve the lives of those struggling with Parkinson’s. The spirit and dedication of World Parkinson’s Program to make medical treatment of Parkinson's disease available for every single individual affected with Parkinson's in every part of the world continues through the efforts of such front-runners.  Join us in congratulating the recipients of this prestigious award.   


World Parkinson's Program is a Canadian based global charitable organization which provides medications, walking aids, educational literature in more than 20 languages, and other supportive services to Parkinson's patients in order to improve their lives every single day. These services aid the daily needs of every person affected with Parkinson's and we strive to improve the “TODAY" of every individual fighting this debilitating disease around the globe. Dr. Rana International Parkinson’s Community Service Award is given yearly to a maximum of three  individuals nominated globally. As our tradition, the name of this year's Recipients of Dr. Rana International Parkinson’s Community Service Award were announced by Gwyn Vernon, a 2015 Award Recipient. 

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  World Parkinson’s Program, Toronto, Canada