Tuesday, August 16, 2016

Fatigue and Loss of Energy - World Parkinson's Program www.pdprogram.org

Bulletin of,
World Parkinson’s Program  – www.pdprogram.org

ISSN: 1929-4980         Volume 8, Number 7, July 2016

Fatigue and Loss of Energy 

Fatigue or a feeling of loss of energy is not uncommon in Parkinson’s disease and may be noticed even before the motor symptoms of Parkinsons disease appear. Patients may feel quite tired by noon time, and may not be able to complete their household chores. Parkinson’s patients may not recognize this as being part of their condition. Due to fatigue everyday activities begin taking a longer time, requiring more thought and energy. Some of the suggestions to improve this problem include:
1.      Proper night time sleep.
2.      Regular exercise.
3.   Managing depression if present, as it may cause you to feel a decreased energy level.
4.      Keeping your weight controlled according to standard guidelines.
5.      Eating on time and not skipping any meals.
6. Doing household chores according to one’s capability and not over-exerting.                  
7.      Giving enough time to finish daily activities.
8.      Taking a short nap daily in the afternoon. Rest periods also help.
9.      Not getting discouraged if you cannot complete certain activities.
10.  Not shying away from asking for help if you need to complete your ADLs.
11.  Staying mentally active.
12.  Not involving in too many activities simultaneously in a short period of time.


Wednesday, July 6, 2016



Khaled Sultan, a native of London Ontario, and is an Investment Advisor with one of Canada's largest investment dealers. He has a background in manufacturing, technology, oil & gas, mining and equity research. 

Prior to his current role, Khaled worked with one of Canada's top five investment banks covering the precious metals sector with a focus on gold equities. Prior to that, Khaled was in charge of the launch and overall management of a Toronto-based start-up firm dedicated to providing research and due diligence solutions to investors in the energy and materials sectors in North America. He has also held key leadership positions at both Exxon Mobil, Imperial Oil, and Celestica.

Khaled's qualifications include a Bachelor of Engineering Science and a Bachelor of Computer Science, both from the University of Western Ontario, as well as a Masters of Business Administration from the Rotman School of Business at the University of Toronto. He is a Professional Engineer as well as a Chartered Financial Analyst (CFA).

In addition to his recent appointment to the board of the World Parkinson’s Program, Khaled sits on the boards of the Merrymount Children's Centre and the Muslim Association of Canada (MAC). Merrymount is a charity committed to providing around the clock support and crisis care for children and families. MAC is also a charity and provides social, educational, and religious services and programs designed to assist in the development of individuals, families and the community.

Khaled was involved with a number of local and national non-profit organizations and initiatives including CIBC’s Run for the Cure and Princess Margret’s Walk to End Breast Cancer, as well as Junior Achievement of Canada, Make A Wish Canada, and Meals on Wheels.

Khaled is married to Asma, and has three children, Noor, Jena, and Muhammad. The World Parkinson’s Program is honored to introduce Khalid Sultan as it new Board member, who will be playing a leading role in making difference in lives of those affected with Parkinson’s disease around the globe.

Tuesday, July 5, 2016

John M. Baumann Joins World Parkinson's Program


The World Parkinson’s Program Board is honored to introduce its newest Board member, John M. Baumann, who will be chairing the Patient’s Mentorship Program. Mr. Baumann is uniquely qualified for this position due to his skills as an internationally recognized inspirational and motivational speaker.  John has been diagnosed with Parkinson’s for the past 14 years and his success in managing Parkinson’s serves a tremendous role model and inspiration for others.   

John graduated from Cornell Law School and the faculty member of University of Louisville for over a decade. He was a corporate attorney for 22 years.  

John is also an author of several publications including Decide Success (You Ain’t Dead Yet), Roadmap to Success (with a chapter contributed by Deepak Chopra), Courageous Stories of Inspiration, The Art of Mentorship, and Adopting a Proactive Prevention Program. John has been a guest commentator on CNN Headline News and countless other TV and radio shows. 

John is a member of the National Speakers Association in the United States. 
He has been the chair and board member of Kentucky Chapter of the Make-A-Wish Foundation, Kentucky Chamber of Congress, Board of Junior Achievement, and Parkinson’s Support Center of Kentucky and Southern Indiana.

Mr. Baumann has delivered keynote inspirational speeches to audiences in several countries including Malaysia, France, Puerto Rico, Canada, and throughout the United States.  

He and his wife, Bernadette, live near Tampa, Florida. USA 

Mr. Baumann is extremely excited to take on this role with the World Parkinson Program and enjoyed delivering the keynote speech at the WPP Gala held in Toronto in April 2016. 

Friday, July 1, 2016

Swallowing and Parkinson’s - Mary Spremulli,MA,CCC-SLP

                                                  Swallowing and Parkinson’s -                                                                                   
                                                   Mary Spremulli,MA,CCC-SLP

Dysphagia (difficulty swallowing) in Parkinson’s disease can result in serious health issues, including aspiration pneumonia, malnutrition, and dehydration. Early identification of swallowing abnormalities is important so as to minimize the impact of dysphagia on health and quality of life. Treatment of swallowing problems is usually provided by a speech-language pathologist, and may include feeding modifications, use of compensatory strategies, and swallowing exercises. A dietician or other expert in nutrition may help you maintain a balanced diet.
How do I know if I have dysphagia?                                                                                                    Drooling, coughing when eating and drinking, a sensation of pills or food “sticking,” and the inability to cough sufficiently to clear material from the airway, all indicate dysphagia. These or other symptoms should be reported to your neurologist or primary care physician.
Is there anything I can do to reduce my risks of aspiration? (aspiration is saliva, liquid and/or food getting into the lungs)?                                                                                                                                                                
ü  Oral care, such as brushing teeth to reduce bacteria in the oral cavity.
ü  When drinking liquids, avoid tilting your head back, as this may increase the likelihood of aspiration. Instead, place the liquid in your mouth, and bring your head into a neutral position to swallow.
ü  Ask your physician if medications can be crushed. If not, use applesauce or honey to coat the surface for an easier swallow. Take pills with 4-6 oz of water or other fluids.
ü  Moist foods are swallowed easier than dry foods. Use extra sauces and gravy if needed to improve swallowing.
ü  If chewing has become difficult and/or eating takes a very long time, you may need to consider changing your diet consistency to smooth or pureed. Most foods that you prepare can be pureed using an inexpensive blender or food grinder.
Report any weight loss to your neurologist or family physician.
Malnutrition weakens the body's immune response and leads to increased risk of infection. The best dietary strategy, therefore, for a healthy mind, body, and immune system is to consume a variety of unprocessed, nutrient-packed foods. Maintain bone health and reduce your risk of osteoporosis by including dairy products like milk or yogurt. Foods high in fiber can reduce symptoms of constipation, another common problem in Parkinson’s. Did you know that when you replace butter in baking recipes with an equal amount of prune puree, you cut the calories in half, eliminate almost all of the fat and add some fiber?

Prune purée: Blend 1 cup of pitted prunes with 6 tablespoons hot water until smooth.

Monday, June 27, 2016




World Parkinson’s Program is the only organization making a true and meaningful difference in everyday lives of those struggling with Parkinson’s and afflicted with poverty. Medications, walking aids and educational literature are the daily need of every Parkinson’s patient living in any part of the world. 

Millions of Parkinson’s patients are not able to afford buying medications, walking aids and don’t have access to the educational literature about Parkinson’s in their native languages. These patients, therefore, are not able to manage their symptoms effectively and become bedridden leading to early death. 

World Parkinson’s Program Is the only global organization providing medications, walking aids and educational literature in more than 15 languages to such deprived populations, making a  practical and real difference every single day in lives of these individuals. 

Monday, June 13, 2016

Oral and Dental Hygiene Campaign of World Parkinson’s Program- Part 3

Oral and Dental Hygiene Campaign of World Parkinson’s Program- Part 3

Benefits of using electric tooth brush in Parkinson’s:
Growing evidence suggests that oral hygiene, which includes regular brushing of teeth and the tongue can be a major defense against the development of serious infections, particularly in the elderly and those who are physically compromised because of neurological diseases such as Parkinson’s. Due to poor hand mouth coordination, Parkinson’s patients may find it difficult to brush their teeth. Without being able to
brush teeth, food remnants can be left over in their mouth, leading to
 poor dental
hygiene. Many medications taken for Parkinson’s or other chronic diseases may have a drying effect inside mouth and throat, further promoting bacterial overgrowth, so adequate intake of water is another important measure that can and should be undertaken. Electric toothbrushes may be helpful.  Electric toothbrushes, particularly rechargeable ones with a rotary or sonic action of cleaning, are easier to use than manual toothbrushes since they provide all the cleaning action while simply guiding it along tooth surfaces.

Dr. Mohammad Ishraque Rana, DDS, Dental surgeon, East York Dental Centre, 957 Coxwell Avenue, Toronto, Ontario, Canada

Oral and Dental Hygiene Campaign of World Parkinson’s Program

Oral and Dental Hygiene Campaign of World Parkinson’s Program

Improving dental hygiene in Parkinson's –Part 2 

Parkinson's disease causes slowness of movements, tremor, and muscle stiffness. Problem with dexterous hand movements and fine motor tasks due to Parkinson’s results in poor hand and mouth coordination leading to difficulty brushing teeth. Without being able to brush teeth, food remnants can be left over in mouth contributing to the poor dental hygiene.

Research has shown an increase of dental caries, periodontal diseases, and loss of teeth in patients with Parkinson’s disease.  Dentists and physicians should educate patients about the importance of oral hygiene, specifically. Treatment in the early stages may help preventing worsening of these conditions, which if ignored may lead to tooth extraction. Patients who are right handed with right-sided onset of Parkinson’s may require the assistance of family members or caregivers while cleaning teeth. Brushing the teeth regularly after every meal, help from family members in patients who are right-handed and have right-sided onset of Parkinson’s disease may be required.

To listen what experts say, click below, 

Dr. Mohammad Ishraque Rana, DDS, Dental surgeon,

East York Dental Centre, 957 Coxwell Avenue, Toronto, Ontario, Canada