Monday, December 25, 2017

Rasheda Ali daughter of Muhammad Ali attending World Parkinson's Program Gala in Toronto on April 6, 2018



Mr. Khalid Usman, Chair event committee, World Parkinson’s Program

Mr. Khalid Usman, Chair Event Committee World Parkinson's Program Invites You at the

WORLD PARKINOSN’S PROGRAM GALA DINNER APRIL 6, 2018

Spend an inspirational evening with

 Rasheeda Ali, daughter of Muhammad Ali, boxing legend




John Baumann, a motivational speaker




  


For details contact Shaheer Aziz, Director, World Parkinson’s Program at: info@pdprogram.org




Shaheer Aziz, Director and co-chair event committee, World Parkinson’s Program

ALARMING FACTS ABOUT PARKINSON'S

WORLD PARKINSON’S PROGRAM

wishes you

HAPPY HOLIDAYS & NEW YEAR 2018

In this Holiday season,

MAKE A DIFFERENCE IN THE LIFE OF SOMEONE WITH PARKINSON’S!



SOME ALARMING FACTS ABOUT PARKINSON’S!

Parkinson’s disease is known to affect all races and occurs worldwide. It is the second most common neurodegenerative disorder.
Some reports have suggested that in North America, more than 1% of individuals above the age of 65 years, and 2% of individuals above the age of 70 are affected with Parkinson’s. More than one million Americans, 100,000 Canadians, and about 10 million people worldwide are affected with Parkinsons disease. Approximately 60,000 Americans are diagnosed with Parkinson’s every year. Parkinson's disease affects 1 in every 500 people in Canada and approximately 6,600 new cases of Parkinson’s are diagnosed every year in Canada.
32 Australian's are diagnosed with Parkinson's disease every day.
There are more than 1.2 million individuals affected with Parkinson’s in Europe.
There are more than 400,000 individuals affected with Parkinson’s disease in Pakistan.
Unfortunately, similar information about most African and Asian countries is not available.
The number of Parkinson’s patients may double by 2031.
The mission of World Parkinson’s Program is unique in and we are dedicated to improving the lives of those Parkinson’s patients living with Parkinson’s TODAY by providing Parkinson’s medications, walking aids and educational literature in more than 20 languages to reach global Parkinson’s community.

Z. Sarfraz, MB(Can) and R.K. Rana, BSc (Can), M. Rana, World Parkinson’s Program, Toronto, Canada

FREE EXERCISE CLASS BY WORLD PARKINSON'S PROGRAM IN TORONTO

JOIN OUR FREE EXERCISE CLASS IN TORONTO


Since World Parkinson's Program (WPP) is dedicated to improving the quality of life of Parkinson's patients and group exercises can motivate many to exercise on regular basis, World Parkinson’s Program will be starting “FREE EXERCISE CLASS” in Toronto.Following is further information about this class,

LOCATION:
Don Mills Library, 888 Lawrence Avenue East, Toronto, ON M3C 1P6,
PH: 416-395-5710
DATE AND TIME:

Every other Tuesday, Beginning Tuesday, December 5 at 1PM-2 PM.

REGISTRATION:

Registration is required by email at events@pdprogram.org

Exercise plays a pivotal role in the day to day management of Parkinson’s disease. Exercise helps patients in maintaining walking ability, improving joint flexibility as well as other associated symptoms such as constipation, sleep problems, depression and increased rate of bone loss. Parkinson’s patients who attend regular exercise classes also keep their social interactions intact which helps with their morale. Dr. Rana, a Canadian neurologist says, "Exercise can help every Parkinson's patient at every stage of this disease". Consistency in doing group exercises starting slowly and increasing intensity gradually helps to build stamina and endurance.  Exercise is also helpful if patients have any co-existing metabolic syndrome such as high cholesterol levels, hypertension, diabetes mellitus or coronary artery disease.


 

Friday, October 27, 2017

RANA EXERCISE DIARY FOR PARKINSON'S

WORLD PARKINSON'S PROGRAM RELEASES SECOND EDITION OF RANA EXERCISE DIARY FOR PARKINSON'S!



 In addition to medications, exercise plays a great role in the management of Parkinson's disease. It is highly recommended by experts that every Parkinson's patient engage in a regular exercise program. However, many reports have shown that only a very small number of Parkinson's patients are motivated enough to exercise on a regular basis. This lack of motivation to exercise has a negative effect on the quality of life of Parkinson's patients. Although Dr. Rana, a Canadian neurologist says, "Exercise can help every Parkinson's patient at every stage of this disease", he also said, "My biggest challenge with Parkinson's patients is to get them to exercise regularly". Since World Parkinson's Program (WPP) is dedicated to improving the quality of life of Parkinson's patients, WPP has released the second edition of Rana Exercise Diary for Parkinson's. This diary is a humble effort to inspire Parkinson's patients to exercise on regular basis.  This diary provides illustrations and details of exercises with a daily log which may benefit many Parkinson's patients. This diary can be downloaded free of charge by visiting the resource centre on the website of WPP or by clicking the following link. 




Parkinson's clinics and Movement disorders centers can also request hard copies of this diary by emailing WPP at info@pdprogram.org.



Restless Legs Syndrome and Parkinson’s:

ASSOCIATION OF RLS & Parkinson’s:

September 23, 2017 - RLS Awareness Day

Patients with RLS usually describe a feeling of aching deep in their calves or a desire to move their legs which mostly occurs in the evenings or at bedtime and is partially or completely relieved with walking. These symptoms do interfere with sleep at night and may cause excessive daytime drowsiness. Patients find difficulty in sitting for prolonged periods, such as watching movies, taking long car rides, or plane flights. Low iron levels have been associated with Restless Legs Syndrome. Patients with Parkinson’s disease are especially more bothered by symptoms of Restless Legs Syndrome because they have difficulty walking due to their poor mobility and therefore feel very distressed.

Because of the overlap of symptoms of RLS and restlessness in wearing off periods the true prevalence of RLS in Parkinson’s disease is difficult to determine. RLS prevalence in general population may be around 5 – 7%, whereas in Parkinson’s disease, the prevalence of RLS may be as high as 15-20 %.

It is not yet known whether RLS is associated with increased risk of developing Parkinson’s disease. Parkinson’s patients should make note of such symptoms and discuss them with their neurologist at regular appointments. Physicians usually rule out other causes with similar symptoms such as neuropathy, arthritis, degenerative disc disease affecting the lower back, pregnancy, iron deficiency, or kidney failure. Some individuals may find soaking in warm water and massaging their legs helpful. Application of warm and cold packs can partially relieve some of the symptoms of RLS. Compression stockings, moderate and regular daily exercise, and following principles of sleep hygiene may provide some benefit as well.


Z. Sarfraz, MB(Can) and R.K. Rana, BSc (Can), Muhammad Rana, World Parkinson’s Program, Toronto, Canada

DON’T IGNORE A TREMOR!

HOW TREMOR OF PARKINSON'S IS DIFFERENT FROM ESSENTIAL TREMOR!

Any one may feel a little shaky when they are nervous, such as giving a talk first time to a group of people they don’t know. However, having a tremor in normal conditions is not normal. Tremor may be the first sign of Parkinson’s; thus, it should not be ignored.

Tremors are involuntary and rhythmic oscillations of muscles which induce an involuntary movement of a limb. Tremors can be due to many different causes. Two of the common causes of tremor are below,

-Essential tremor (ET) is the most common movement disorder, and is quite different from Parkinson’s disease tremor. Most cases of Essential Tremor are usually mild, and don’t require treatment. When symptoms do manifest they can include both postural and action tremors.


-Parkinson’s disease Tremor is typically a resting tremor and occurs when the affected body part is at rest. Resting tremor in Parkinson’s disease usually begins in one hand, arm or in a leg. A resting tremor usually dampens upon the initiation of a movement especially in the early stages of Parkinson’s. Resting tremor may just begin in thumb and/or index finger in some patients resembling pill rolling movements i.e. pill rolling tremor. The presence of a resting tremor in a patient with suspected Parkinson’s disease is supportive of the diagnosis. While tremor is the most common initial presenting symptom of Parkinson’s disease, only 70-80 % of patients have a resting tremor. The remaining 20-30 % of patients will demonstrate no signs of a tremor at all; making the identification of other symptoms essential. A tremor of Parkinson’s disease can involve the lips or chin, but usually does not involve head or voice.

Z. Sarfraz, MBBS (Can) and R.K. Rana, BSc (Can), Muhammad Rana, OS (Can) World Parkinson’s Program, Toronto, Canada


BATH ROOM SAFETY IN PARKINSON’S

 AVOIDING FALLS IN BATHROOM  

Loss of flexibility and postural instability due to Parkinson’s disease can place an individual at risk of falling. Falls become a significant problem as Parkinson’s disease progresses. About 70% of patients with Parkinson’s disease experience falls each year, and 13% of them fall more than once a week. Risk factors include age, disease duration, loss of balance, drop in blood pressure on assuming upright position, delayed reaction time, dementia, and slowness of movements.

Other factors that contribute to falls in elderly include poor vision, decreased mobility, muscle weakness, and arthritis. Falls may result in fractures and significant disability. Many falls occur in bathroom, one should follow the strategies given below to reduce the risk of falling in bathroom,


1.      If you have any concerns about your mobility in the bathroom, do not lock the door. If in doubt, do not bathe when you are alone.
2.      Avoid using towel rails and soap dishes for support when getting in and out of the shower, or on and off the toilet as they are not safe.
3.      Properly installed grab bars will give support and stability and promote independence.
4.      Non-skid strips and/or bath mats can stop slipping. Sitting to shower is recommended for those with balance difficulty. A hand- held shower, bench, or shower seat enables you to remain safe and independent and minimizes the risk of falling.
5.      Getting up in the middle of the night may be risky, particularly if you experience “wearing off” or prolonged “OFF” periods. Rather than struggling to walk to the toilet, consider using a portable commode or urinal by the bedside.
6.      You should not buy any equipment or make any adaptive changes to your home without the advice of an occupational therapist. Contact your local health unit and ask to speak to the community therapist for your area and discuss your difficulties. They can advise the use of appropriate aids such as grab bars, and shower chairs, etc.

Z. Sarfraz MBBS (Can) and R.K. Rana, BSc (Can), World Parkinson’s Program, Toronto, Canada