Sunday, September 11, 2016

Results of “BOOST” Study for Parkinson’s Vaccine:

Results of “BOOST” Study for Parkinson’s Vaccine:

www.pdprogram.org


The results of “BOOST” follow up study by Austrian biotech AFFiRiS for the development of Parkinson’s disease vaccine show that an additional dose is safe and can produce antibodies against alpha-synuclein. The vaccine developed by AFFiRiS called PD01A can cause the body's natural immune system to produce antibodies against alpha-synuclein protein. The deposits of this protein in certain parts of brain may be responsible for the death of dopaminergic neurons leading to Parkinson's disease.  In the first step of this clinical trial 24 individuals with Parkinson’s were given four doses of PD01A and half of them produced antibodies against alpha-synuclein.  Since the levels of alpha-synuclein antibodies declined overtime, each participant was given one more dose a year later to see if the vaccine would be safe and raise antibody levels against alpha-synuclein. The results reported by AFFiRiS showed that the trial was safe and all responders from the first trial and some others who did not respond in the initial trial produced antibodies against alpha-synuclein. Armand Gilks, the chair of World Parkinson’s Program says, Although it still remains unknown whether vaccine will slow down or stop Parkinson's progression, these results are promising and one more step closer to victory. Future studies on safety may answer this question”

                                     


Tuesday, September 6, 2016

Drooling and Parkinson’s Campaign of World Parkinson's Program- Part 1


Drooling and Parkinson’s Campaign of WPP- Part 1

Drooling has long been known to be associated in Parkinson's. An Egyptian text from 1200-1350 B.C., describes a king of the nineteenth dynasty as, “divine old age had slackened his mouth, he cast his spittle upon the ground and spit it out,” a scene likely referring to drooling. 78% of Parkinson’s disease patients report drooling of saliva. Drooling in Parkinson’s disease is due to decreased swallowing.  Initially, drooling is noticed at nighttime only, and some patients may wake up in the morning with a “Wet Pillow”. However, later on drooling becomes noticeable during the daytime as well. 

Some patients with Parkinson’s may walk into the doctor’s office with a handkerchief to wipe off their saliva. Many individuals find drooling quite embarrassing as it may lead to social withdrawal and isolation. In the beginning of the course of Parkinson’s, some patients may not know if drooling is related to Parkinson’s and they may attribute this to poorly fitting dentures. Treating neurologists should take the initiative of screening patients for this and other non-motor symptoms since drooling can be treated. 
 
JOIN US – Parkinson’s Seminar,
“MEMORIAL FOR MUHAMMAD ALI”
Saturday, November 5, 1:30 – 3:30 PM

Bendale Library, 1515 Danforth Rd, Scarborough,
Toronto, Ontario, Canada M1J 1H5

Tuesday, August 16, 2016

Fatigue and Loss of Energy - World Parkinson's Program www.pdprogram.org

Bulletin of,
World Parkinson’s Program  – www.pdprogram.org

ISSN: 1929-4980         Volume 8, Number 7, July 2016

Fatigue and Loss of Energy 



Fatigue or a feeling of loss of energy is not uncommon in Parkinson’s disease and may be noticed even before the motor symptoms of Parkinsons disease appear. Patients may feel quite tired by noon time, and may not be able to complete their household chores. Parkinson’s patients may not recognize this as being part of their condition. Due to fatigue everyday activities begin taking a longer time, requiring more thought and energy. Some of the suggestions to improve this problem include:
 
1.      Proper night time sleep.
2.      Regular exercise.
3.   Managing depression if present, as it may cause you to feel a decreased energy level.
4.      Keeping your weight controlled according to standard guidelines.
5.      Eating on time and not skipping any meals.
6. Doing household chores according to one’s capability and not over-exerting.                  
7.      Giving enough time to finish daily activities.
8.      Taking a short nap daily in the afternoon. Rest periods also help.
9.      Not getting discouraged if you cannot complete certain activities.
10.  Not shying away from asking for help if you need to complete your ADLs.
11.  Staying mentally active.
12.  Not involving in too many activities simultaneously in a short period of time.


                                      


Wednesday, July 6, 2016

KHALED SULTAN JOINS BOARD OF WORLD PARKINSON’S PROGRAM

KHALED SULTAN JOINS BOARD OF WORLD PARKINSON’S PROGRAM

Khaled Sultan, a native of London Ontario, and is an Investment Advisor with one of Canada's largest investment dealers. He has a background in manufacturing, technology, oil & gas, mining and equity research. 

Prior to his current role, Khaled worked with one of Canada's top five investment banks covering the precious metals sector with a focus on gold equities. Prior to that, Khaled was in charge of the launch and overall management of a Toronto-based start-up firm dedicated to providing research and due diligence solutions to investors in the energy and materials sectors in North America. He has also held key leadership positions at both Exxon Mobil, Imperial Oil, and Celestica.


Khaled's qualifications include a Bachelor of Engineering Science and a Bachelor of Computer Science, both from the University of Western Ontario, as well as a Masters of Business Administration from the Rotman School of Business at the University of Toronto. He is a Professional Engineer as well as a Chartered Financial Analyst (CFA).

In addition to his recent appointment to the board of the World Parkinson’s Program, Khaled sits on the boards of the Merrymount Children's Centre and the Muslim Association of Canada (MAC). Merrymount is a charity committed to providing around the clock support and crisis care for children and families. MAC is also a charity and provides social, educational, and religious services and programs designed to assist in the development of individuals, families and the community.

Khaled was involved with a number of local and national non-profit organizations and initiatives including CIBC’s Run for the Cure and Princess Margret’s Walk to End Breast Cancer, as well as Junior Achievement of Canada, Make A Wish Canada, and Meals on Wheels.

Khaled is married to Asma, and has three children, Noor, Jena, and Muhammad. The World Parkinson’s Program is honored to introduce Khalid Sultan as it new Board member, who will be playing a leading role in making difference in lives of those affected with Parkinson’s disease around the globe.


Tuesday, July 5, 2016

John M. Baumann Joins World Parkinson's Program

JOHN M. BAUMANN SELECTED AS WPP BOARD MEMBER AND CHAIR OF THE PATIENT MENTORSHIP PROGRAM OF THE WORLD PARKINSON’S PROGRAM (WPP) 

The World Parkinson’s Program Board is honored to introduce its newest Board member, John M. Baumann, who will be chairing the Patient’s Mentorship Program. Mr. Baumann is uniquely qualified for this position due to his skills as an internationally recognized inspirational and motivational speaker.  John has been diagnosed with Parkinson’s for the past 14 years and his success in managing Parkinson’s serves a tremendous role model and inspiration for others.   

John graduated from Cornell Law School and the faculty member of University of Louisville for over a decade. He was a corporate attorney for 22 years.  

John is also an author of several publications including Decide Success (You Ain’t Dead Yet), Roadmap to Success (with a chapter contributed by Deepak Chopra), Courageous Stories of Inspiration, The Art of Mentorship, and Adopting a Proactive Prevention Program. John has been a guest commentator on CNN Headline News and countless other TV and radio shows. 

John is a member of the National Speakers Association in the United States. 
He has been the chair and board member of Kentucky Chapter of the Make-A-Wish Foundation, Kentucky Chamber of Congress, Board of Junior Achievement, and Parkinson’s Support Center of Kentucky and Southern Indiana.

Mr. Baumann has delivered keynote inspirational speeches to audiences in several countries including Malaysia, France, Puerto Rico, Canada, and throughout the United States.  

He and his wife, Bernadette, live near Tampa, Florida. USA 

Mr. Baumann is extremely excited to take on this role with the World Parkinson Program and enjoyed delivering the keynote speech at the WPP Gala held in Toronto in April 2016. 


Friday, July 1, 2016

Swallowing and Parkinson’s - Mary Spremulli,MA,CCC-SLP

                                                  Swallowing and Parkinson’s -                                                                                   
                                                               
                                                   Mary Spremulli,MA,CCC-SLP
                                                                      

Dysphagia (difficulty swallowing) in Parkinson’s disease can result in serious health issues, including aspiration pneumonia, malnutrition, and dehydration. Early identification of swallowing abnormalities is important so as to minimize the impact of dysphagia on health and quality of life. Treatment of swallowing problems is usually provided by a speech-language pathologist, and may include feeding modifications, use of compensatory strategies, and swallowing exercises. A dietician or other expert in nutrition may help you maintain a balanced diet.
How do I know if I have dysphagia?                                                                                                    Drooling, coughing when eating and drinking, a sensation of pills or food “sticking,” and the inability to cough sufficiently to clear material from the airway, all indicate dysphagia. These or other symptoms should be reported to your neurologist or primary care physician.
Is there anything I can do to reduce my risks of aspiration? (aspiration is saliva, liquid and/or food getting into the lungs)?                                                                                                                                                                
ü  Oral care, such as brushing teeth to reduce bacteria in the oral cavity.
ü  When drinking liquids, avoid tilting your head back, as this may increase the likelihood of aspiration. Instead, place the liquid in your mouth, and bring your head into a neutral position to swallow.
ü  Ask your physician if medications can be crushed. If not, use applesauce or honey to coat the surface for an easier swallow. Take pills with 4-6 oz of water or other fluids.
ü  Moist foods are swallowed easier than dry foods. Use extra sauces and gravy if needed to improve swallowing.
ü  If chewing has become difficult and/or eating takes a very long time, you may need to consider changing your diet consistency to smooth or pureed. Most foods that you prepare can be pureed using an inexpensive blender or food grinder.
Report any weight loss to your neurologist or family physician.
Malnutrition weakens the body's immune response and leads to increased risk of infection. The best dietary strategy, therefore, for a healthy mind, body, and immune system is to consume a variety of unprocessed, nutrient-packed foods. Maintain bone health and reduce your risk of osteoporosis by including dairy products like milk or yogurt. Foods high in fiber can reduce symptoms of constipation, another common problem in Parkinson’s. Did you know that when you replace butter in baking recipes with an equal amount of prune puree, you cut the calories in half, eliminate almost all of the fat and add some fiber?

Prune purée: Blend 1 cup of pitted prunes with 6 tablespoons hot water until smooth.

Monday, June 27, 2016

WHY WORLD PARKINSON'S PROGRAM?

IS WORLD PARKINSON'S PROGRAM UNIQUE?

www.pdprogram.org

World Parkinson’s Program is the only organization making a true and meaningful difference in everyday lives of those struggling with Parkinson’s and afflicted with poverty. Medications, walking aids and educational literature are the daily need of every Parkinson’s patient living in any part of the world. 

Millions of Parkinson’s patients are not able to afford buying medications, walking aids and don’t have access to the educational literature about Parkinson’s in their native languages. These patients, therefore, are not able to manage their symptoms effectively and become bedridden leading to early death. 

World Parkinson’s Program Is the only global organization providing medications, walking aids and educational literature in more than 15 languages to such deprived populations, making a  practical and real difference every single day in lives of these individuals.